Our Mission

To empower, support, and advocate for everyone living with or affected by Thoracic Outlet Syndrome in the UK. We deliver peer-led emotional and practical support, bridging the gap between patients and medical professionals through amplifying the patient voice.

How we started...

TOS Voices is a UK community group, currently in formation, and founded by three individuals with lived experience of Thoracic Outlet Syndrome (TOS), including Neurogenic (NTOS), Venous (VTOS) and Arterial (ATOS).

Living with TOS can have a significant impact on daily life, with many experiencing persistent pain, reduced function, challenges with work or education, and the isolation that can come with living with a complex and often poorly understood condition.

These shared experiences inspired us to establish TOS Voices.

Our aim is to bridge the gap between patients and healthcare professionals to improve the lives of everyone affected by thoracic outlet syndrome. By working collaboratively and placing lived experience alongside clinical expertise, we hope to improve understanding of TOS, amplify the patient voice and contribute to better care and outcomes across the UK.

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